Showing posts with label ED. Show all posts
Showing posts with label ED. Show all posts

Thursday, July 9, 2009

Week Six Down



Yesterday I decided to try my best to look decent and play dress-up :)








Well, it has been a pretty quiet week. The weekend was calm. On Sunday my nutritionist shared her own story of recovery during a group. It was very inspiring to me. It made me realize that she could truly emphasize with me and that I need not be ashamed of some of the behaviors that I have engaged in over the years. When she talked about the beginning of her recovery, she told how the most important step she took was to be 100% honest with her sponsor. For some reason that really struck me. There are secrets that I have been keeping- nothing major, but they add up and fuel my addiction. Things such as having extra salt, extra diet coke, ect. At that moment in Deborah's story I felt compelled to be 100% honest. I know that recovery means 100% honest. I decided to come clean. As the evening wore on, I started to become hesitant and knew I was losing that motivation. I told a peer that there was something I needed to talk to Deborah about and asked that she would hold me accountable to doing so. Towards the end of the night I pulled Deborah aside and told her what was going on- everything. I trust Deborah the most of anyone. I had put myself in a difficult situation- on one hand I feared the consequences (well, mainly the consequence of being kicked out- I could handle and deserved anything else), but on the other hand I knew that recovery = honesty. I could get rid of whatever forbidden things I had, but that would only be a patch over the pothole. Thankfully, Deborah was very gentle, but I worried about the team's response on Monday. It went better than ever- I was actually commended for my honesty.
Tuesday I shared in group about the most difficult aspect of my eating disorder- the ruminating. It is a behavior that I am so ashamed of and is a huge dam in my recovery. My peers were very supportive, so I am glad that I am able to talk about it and get help with the issue.
The rest of the week has been a bit blase, a bit down. I don't know. I am relaxing that I am struggling less, having minimal urges to purge, ect, and that is a bit scary. I feel emotionally blank.
On the upside, I realized yesterday that I feel more comfortable within the community. I am finding it easier to talk to and connect with my peers and the staff. Hopefully that will continue to improve.
On Tuesday I woke up at 4:30am and could hear the wolves outside. I tried to get the howling on video, but you can only hear birds: (the bright object is actually the moon, not the sun)










Saturday, June 27, 2009

Couch Bum(med)

Well, I had a frustrating end to the week. Which kind of sucked since the rest of my week was also frustrating.
Thursday afternoon my tube was clogged. In all honesty, I have not been great about taking the initiative to flush it every time I am supposed to. So it was pulled Thursday, and I was hoping that that meant it would stay out. Surprisingly, I found dinner Thursday night to be particularly hard. I have been wanting the tube out, but once it was, I was suddenly thinking about how much I didn't want to eat, how now nobody could 'force' me to do it. Also, I truly have not been experiencing any hunger. I was having an okay time in the beginning, but now I have absolutely no desire to eat. So eating dinner was me literally forcing it down. I was trying to use the fact that I wanted to go to the movie Friday night as motivation. But I was rather miserable the rest of the night.

Friday morning I found out that I was going to the hospital first thing to get a new tube. Part of me was frustrated- I didn't even get a chance to ask anyone if I could have a 'trial period' without it, and I didn't see the necessity in having it replaced since I have only used it a couple of times. But then there was another part of me that was relieved- I didn't have to torture myself with the guilt and shame for eating when I didn't 'have to'. This is disordered thinking, I know. Anyways, I had to get it done, and thankfully the procedure went a lot smoother than the first time.

Friday afternoon I was hit with another bombshell. Apparently since I have not gained any weight (or lost some- I am not exactly sure) my insurance is questioning whether this program is appropriate for me or whether I need a more intensive inpatient rigid refeeding/weight gain program. This would really suck. I will not go to such a program, so I really hope things work out. Because my weight has not progressed, I am on a new protocol. I am back on 24-hour observations and also on strict 'couch rest'. This means I can only walk to the bathroom and dining room (about 15 feet away) and the group room. The rest of the time I have to sit on the couch. I cannot even go on the bowling outing today or sit on the porch on the opposite side of the room :( I understand the concept of them not wanting me to expend even the slightest amount of energy, but it is still disappointing. And I get the sense that they don't completely believe me that I am not doing something 'bad' to avoid weight gain. That is actually the worst part- I can't do ANYTHING to make my body do what it 'needs' to do. I am literally helpless. So parts of it do feel punishing. But it will supposedly be re-evaluated on Mon. I am trying to remind myself:

"God grant me the serenity to accept the things I cannot change"


My sacred 'couch seat':



Friday, June 19, 2009

TGIF

It has been a rough week. Sorry I haven't updated.
This week I have started to share my timeline with the group and with my therapist. Today I was told that my timeline is more like a memoir and I need to cut it down for the group part. I have enjoyed writing my timeline and am going to keep it as a work in progress.
Tuesday night the staff decided to forgo our pre-planned meal and got pizza and (honestly) salad drenched in dressing. I was already very anxious about this change, and was supposed to sit next to my dietitian. However, she ended up spending the time talking with another client, thus I was sort of alone at the end of the table. I didn't eat, didn't supplement. No one really talked to me about it. I left dinner and sat outside for quite a while, feeling abandoned and needy, and very much wanted to cut. The fact that no one noticed I was missing or came to look for me sort of cemented these beliefs for me.
I know my behavior sounds childish and manipulative. Honestly I was experiencing intense emotions, and this rage inside. Maybe it was connected to the fact that I have been talking a lot about experiencing abandonment as a child or whatever. I did have an opportunity to talk to my peers about the situation that night, and spoke of it with a couple of staff the following day. Both Wednesday and Thursday I purged. At least one of those times I let staff know I had the urge, but I did not seek out the level of support I needed, I guess. My team thinks that my acting out on behaviors is related to some emotions that might be stirred up since I am sharing my timeline. I don't really like this theory; I feel like it is making justifications for my behavior. Also, it is hard for me to see this as a possibility because I really am not feeling emotions about it. But I m trying to entertain the idea that my emotions and behaviors are related.
Anyways, I am going to make a concerted effort to stick to my observation time, ask for support and use concrete coping skills. I do not want my stay here to be jeopardized.
It has gotten hella hot here. Yesterday and today have been near 100 degrees, and humid. The air conditioning cant keep up, so the building is warm (I am actually comfortable, but others are sweltering). Yesterday some folks saw a peacock in the yard (4 feet tall!!) but I did not see it. I did, however, see another black snake today, it was sort of cute, so small I thought it was a large worm.
Tonight we are going to see The Proposal, which I am excited about since that was my pick for the movie. Tomorrow's outing is to Border's and JoAnne Fabrics. I may or may not go to church on Sunday...I think I will see how the other outings go, and I want to examine my true intentions for going.
I am glad this week is over. I am looking forward to a better week next week.

Wednesday, June 10, 2009

Hump day!!

This week is kinda odd because it is family week, so all of our groups are cancelled Tues, Wed, Thurs and we all sit with our families cramped in a room and listen to lectures. Yesterday I had a hard time staying awake!
Yesterday was the first day of my new menu increase, my breakfast was doubled. I had a really hard time with it, and was especially struggling to eat lunch because I was still so full from breakfast. After lunch I was really struggling. I didn't necessary have an urge to purge, but I felt like my intolerance was mounting and that using an ed behavior was imminent. I knew I could not do dinner. But as the afternoon wore on, and a good nap and therapy session took place, by the time dinner was here I was able to get through it. I am not happy about my menu increases, especially since Deborah said I have not gained any weight since I have been here and likely will have more increases.
For those of you that have not had an eating disorder, let me explain how menu increases are so paradoxical to an eating disordered patient...or at least for me. When I hear that my menu needs to be increased, part of me is happy. Menu increases mean I am not gaining weight exponentially. But meal plan increases also are scary...the fear of being overly full, of wanting to purge more often. Also my fears of gaining weight and getting fat skyrocket. So it is quite a emotionally confusing process.
Today is menu planning. I have been looking forward to it all week. I like picking my menus, seeing what is going to be served in the following week and basically obsessing over it. It is a very eating disordered thing, I know. Probably why they only do it once a week...

Some of you, my friends that are suffering or have suffered from an eating disorder, I know it seems that this blog focused on the food and behaviors and the ed protocols. It partially is, my eating disordered thinking is still quite ingrained. But also, I am trying to explain the processes and challenges of fighting the eating disorder and being in treatment because there are people (hopefully) that read this who don't have a clue about eating disorders, let alone a treatment program, and don't understand the meal plans, the struggles and the routine of being in treatment. I am trying to keep away from using numbers as much as possible, as well as not talking about specific weights, but if you find things triggering, or can think of ways that I improve my sharing of my experiences, please let me know!

Tuesday, June 2, 2009

It has been a rough week...and it is only Tuesday!
Mostly the struggle with eating has been hard, much harder than I had anticipated. I have never had SO much anxiety about eating. One of my 'eating disorder rules' has always been to not eat when I am not hungry. Although I was always ravenous at home, I have NOT been hungry since I have been here. I am not sure if it is because I am not binging or purging (likely) or whatever. But I am not hungry...which makes it physically unattractive to eat, and the 'ED voice' adds fuel to the fire. I am offered Ensure for the portion of food I do not complete, but I HATE Ensure. I hate the taste smell and texture, the nutrition facts that I know about it, what it symbolizes. So while I have had some meals (and an entire day) where I have completed 100% of my meals, for the most part I have not.
Yesterday my nutritionist brought up the issue of a feeding tube. They cannot keep me here if I am not getting my minimum nutritional needs met. She explained that she felt the tube was absolutely necessary, and not a sign of noncompliance. I have a lot of mixed feelings about it. Part of me thinks that I have not been binging or purging the last few days and therefor could 'handle' it at home...but I know that that is not realistic. Mostly I feel like I am a failure by getting a tube, that I am taking the 'easy way out'. It seems that if I am going to be getting supplement through a tube, I should be able do drink the damn stuff. But I haven't. In the past the tube has been a symbol of ED vanity for me. Now it feels like a sign of weakness.
I agreed to the tube. I just could not make a decision, and as much as I wanted to say "I promise I can do this" I don't know that I can. It is not like I have been going into meals planning not to eat...quite the opposite. I cannot really describe the anxiety and thoughts that keep me from doing what I need to do, I cannot just do the motions and not think about it. I honest-to-God have tried.
I got the tube this morning. The procedure was horrible, worse than any I have had in the past. I hated having to come back to the center and have the other girls see me...my biggest fear is that this tube is going to isolate me from the other girls, make me an outcast....
Despite the tube, I am not going to give up trying. They are going to let me try to eat as much as I can and use the tube when I cant, or don't or whatever you want to call it. So far it has been okay...tonight I even ate 100% at dinner, therefor do not need to have a tube feeding. I hope that I do not have it for long and that I do not feel so much anxiety.
Tomorrow I am supposed to get my room- finally! I also have an appointment with a GI specialist about my horrid acid reflux. I should be getting my first Contract- a weekly plan that outlines my goals, assignments and privileges for the week.

Saturday, May 30, 2009

48 Hours

Has anyone ever watched that show on A&E? Good show....

Well, today has been harder for me. Until today I have not been eating much. I have a lot of anxiety around eating in front of other people, about gaining weight too fast and, most of all, about having to sit with the food in my stomach after the meal. The first couple of days I wasn't hungry (odd for me) and it was easy to just control what I was eating (or not eating).
So far today I have eaten 100% of my meal plan. The urges to binge and purge (especially binge) are pretty strong. I know if I wasn't here I would be acting on them. This is another reason I have been avoiding eating..once I start, I just want more and more. The time between meals seems never-ending and agonizing. I have tried mostly to sleep, but I can only sleep so much. My meal plan is at the 50% level, the lowest. That means that of a 'normal' meal, I am plated 50% of that (but expected to eat 100% of that 50%...confusing, I know). I meet my dietitian tomorrow and I am not sure if she is going to alter my meal plan. Part of me wants her to, I am just so damn hungry now, but the eating disorder part definitely does not want that to happen. That part is mad at me for starting to eat this morning and thus starting the whole cycle of hunger, binge cravings, and eating.
Tonight we are going on an outing to Borders. I am hoping I can enjoy that, but I am afraid that I will be distracted, or even looking for a way to get away with something....fortunately, I am pretty sure I have to stick with a staff member.
I have not purged since I have been here- the longest I have gone since in CFC. And I have eaten (and kept down) more food than I have in months, probably in at least a year. I know I am supposed to be taking this 'one second at a time' but it is just so damn hard.

Friday, May 29, 2009

A (not so) Brief History

Well, I am not being as on the ball with this whole blog thing as I had planned. Typical me!
I am planning to chronicle my journey of recovery here, as well as other things, but I realize that some of you don’t really know me, so I thought I would give a brief history :)
I was born January 30, 1985 in Charleston, SC. My dad was an officer in the Navy, and for the first 7 or 8 years of my life he was frequently out at sea for months at a time. As a young child I lived in Groton, CT, Keyport, WA, Monterey, CA, and Silverdale, WA. My sister, Jaclyn, was born when I was 3 and my brother, Johnny, followed a year later. My biological mother was an alcoholic and was physically and emotionally abusive.
When I was 9, my parents divorced. My dad had custody of my siblings and I and we moved to Annandale, VA, right outside of DC. We lived there for a year before moving to Papillion, NE. In Nebraska my dad met Dawn, and her daughter, Katie, and they were married the next year.
Around this time, my eating disorder began. For most people, this change takes place over time. For me it was immediate. I decided one day that I was not going to eat, and I didn’t for days on end. I was overweight at the time, and although I have always thought I was always a fat kid, when I recently was looking at pictures from my childhood, I realized this was not true.
I don’t know why my eating disorder (ED, for short) began- that is the million dollar question. I tend to think that, like most diseases, it is a combination of nature and nurture, or genetics and environment. My biological mom had an eating disorder in college. Also, besides the typical identity crisis and awkwardness that accompanies adolescence, I felt displaced in my family as I was not longer the “woman of the house” and co-parent to my siblings. Personally, I am not a big believer that it truly matters why one develops an ed, or that there must be a concrete identified reason in order to recover.
Within a few months I had lost quite a bit of weight. The counselors at school noticed, and contacted my dad. My dad tried to handle my situation in his familiar militaristic authoritative way, but to no avail. It was a frustrating time for my new family. Eight months after I first stopped eating, I was sent to Menningers clinic in Topeka, KS, where I stayed for six months.
When I was discharged I was no better. In fact I had “picked up” some new behaviors from my fellow patients. It was decided that I would live with my grandma and I flew out to Everett, WA and finished my eighth grade year at the school where she was the principle.
That summer I made no improvement in my eating disorder. I became homesick for my family and decided to move back with them, although my dad had been transferred again, so we were all settling into a huge (9 bed, 4 bath, 7 fireplace) military home built in the 1800’s in Kittery, Maine. Katie and I began our freshman year in high school, but I quickly became more engrained in my eating disorder. The next couple of years were a mess of hospitalizations and treatment attempts, dozens of them, so only for a night or two, other times for several months. I was a difficult patient, not making any attempt to control my behaviors or really having any desire to get well. I missed most of my freshman year, and nearly all of my sophomore year. The few times I was home, between hospital stays, I felt out of place in my family, the black sheep. I became distanced from my siblings, most notably Katie, who had once been my best friend. Now we fought constantly.
The ed was taking a major toll on my family- financially, emotionally, and physically. I was very fortunate enough to have found a wonderful, incredibly knowledgeable doctor, Dr. Gladstone, and a great case manager, Nadine. Both treated me with a “tough love” approach, and neither let me get away with things. They were my constant recovery warriors, even though I wasn’t.
When I was 16, my parents decided that I needed a longer-term treatment program. They decided to send me to a year-long residential girl’s facility. I was appalled at the idea. A year?? No way. Knowing the program required that their clients be medically and psychiatrically stable, I developed a plan in which I would take a bunch of pills, overdose, in order to have to not go. The day before I was to be admitted, I swallowed a bunch of pills, as planned, and almost immediately let the school nurse know. My intention was not suicide, rather a way to avoid treatment. It worked. I did not have to go to the program. In recent years, I have some to realize that this was the biggest mistake of my life. I avoided a year-long program, but at what cost? Eight years later I am still sick. If I had taken that time, I possibly could have been in recovery all this time, saving myself and those around me from a lot of turmoil.
I didn’t have to go to the program, but I could not come home either. In fact, I would never go home again. After two weeks in the medical hospital, I was sent to another program, where I stayed 7 months, never really getting any better. When it was time for me to leave, it was decided that I could not go home. Instead, I was sent to a group home/ independent living house, Oliver Place, in Bath, ME.
I did relatively okay at Oliver Place. I went to school consistently, unlike the other clients there, and held down a job I enjoyed. I was still engaging in eating disorder behaviors on a daily basis, but they were relatively less disruptive to my daily life. Eight months after living in the OP house, I graduated to the independent living portion of the program, where I moved into my own apartment. I went to school every day, worked and manages other adult responsibilities. However, soon my eating disorder tightened its grip. I lost more weight, to the point where I was significantly underweight for the first time. It was a cold winter in Maine. In February I joined my grandma on a vacation in St. Thomas, where I spent most of my time in the hot tub. It was gorgeous and relaxing, but my eating disorder did not relent.
During this time and the coming year, I went in and out of the New England Eating Disorders Program in Portland several times. The trips sort of blur together. I know I went in November of 2003, and was discharged a couple of months ever, after making virtually no improvement.
I quickly spiraled, taking desperate measures to support my eating disorder. I stole food from stores, getting arrested twice within three days. I was so ashamed, especially since word spread fast in the small town of Bath and I babysat for one of the town’s police officers. I was scheduled to be readmitted to Mercy soon, and at my court appearance the judge took that into consideration and generously let me off only having to pay restitution and a small fine.
I did well this time in treatment- the best ever. I do not know what contributed to my success, but I found a medication that was helpful with my urges to binge, and I had an amazing therapist. I was going weeks without purging and was participating in the day program. I decided that I was going to move out to Seattle, something I had always wanted to do, but had never been well enough to do. I slowly started going to the Eating Disorders Program, and began working. I held down two jobs that I hated, but I was making (and saving) money. In November I was discharged from Mercy, at a healthy weight and with my behaviors under control. A few weeks later I graduated from Oliver Place, packed up my car and drove myself across the country.
I spent Christmas in New Orleans with my family. In January I started community college and fell in love with it. I would stay up until the middle of the night studying and working on assignments, more than was necessary. I became a Senator for the ASB and became very comfortable on campus. However, once again, my eating disorder resumed with a vengeance. At the end of the school year I interviewed for an ASB vice-president position that I desperately wanted, and got the position. It was one of my happiest moments. But my excitement was short-lived due to my worsening eating disorder. I had no energy to do anything. I lost complete control of some of my bodily functions, which landed me in the hospital. I was told that my body was literally eating itself, and an ED specialist gave me about two weeks to live. When I got home, I started frantically searching for a program to get into. Meanwhile, my entire extended family had planned a vacation/reunion at Yellowstone. Waiting to be admitted to a program ASAP, I could not go. Many programs would not take me because I was so sick. Knowing that I would not be able to do it, I relinquished my coveted ASB position. Eventually I went back to Maine and Mercy. They were shocked to see how bad I had gotten in the eight months since I had been released. My therapist there decided she could not work with me this time as she felt too attached. I floundered in the program for two months before we decided that I was not progressing and that treatment was ineffective. I returned home.
I sunk into a deep depression, living on my own place and sleeping on the floor in front of the heater. I cried. I tried to work several jobs, but didn’t stick with any of them. My family visited for Christmas, but I mostly avoided them. At the end of the year, I decided to return to school, knowing it was the best thing for me, despite my family’s reluctance to support my decision in my depressed state. For whatever reason, school helped. A lot. I rejoined the Senate, became very active in the ASB work, and was the president of the Psychology Club. I reapplied for the ASB vice-president position and again got it. That summer I took an intensive Spanish class, laughed, gained weight and slowly started eating again. I was the happiest I ever remember being. School began, and although I was a bit worried about my ability to handle my new responsibilities, I was excited. The first two months were great. I felt important and respected on campus. Then came the familiar pattern of relapse, slowly at first, but gaining speed. I applied to become ASB president, but was less passionate about it, and it showed. I was not offered the position.
Things declined over the summer, and in September I was admitted to Center for Change in Orem, UT. I was there for six months, and did okay when I was in the strict confines of the program, but as soon as I was out I would purge. I discharged at the end of February, knowing I would relapse.
I immediately began looking for a job and was hired by the City of Everett to work as a clerk for the Parks and Recreation department. I loved it. Besides getting a great pay, the job was easy and I got to meet and interact with lots of people. The job distracted me from my worsening eating disorder. By August my outpatient team was again recommending inpatient treatment. However, I was set to start school at Washington State University in a few weeks, and was excited and determined to go. I said that if things still were not good at the end of the semester, I would go to treatment.
The school year was miserable. As excited as I was to go and as much as I loved the school, it was no match for my disease. I kept to my dorm room, which I lied in alone, and engaged in behaviors. I often saw things or activities I wanted to participate in, but self-consciousness and depression kept me from doing so. In my entire year at WSU, I never knew a soul. Towards the end of the semester I stopped caring about my classes altogether and barley passed.
Towards the end of the year, I decided to once again look into treatment. I had always thought that I would return to CFC should the need arise, but I also began exploring other options. I honestly cannot say that my reason to enter treatment again is because I am 100% certain I want to change my life (to something I cannot even imagine) or because I want to give up my eating disorder. Instead I remember the way my life has become unmanageable, the tolls it has taken and the destruction it has caused. I feel like I will never be completely without it, but that maybe the ED can be a presence that is not so destructive.
I decided to come to Castlewood Treatment Center, in St. Louis, MO. Many factors influenced my decision- the fact that it is a small intimate program, has a heavy focus on trauma work (something I have not really done in the past), works towards a lot more self-accountability and independence and that they have a solid step-down program. I arrived yesterday, May 28th. The grounds are spectacular- words cannot even describe the view and the scenery. The people here are very nice. I can tell that they expect you to take more responsibility than other programs have, but this morning I found myself oddly welcoming the challenge. I do not know what the coming weeks or months will offer, but I guess I will find out. Right now I am just taking it one day at a time.

Thursday, May 7, 2009

Welcome!

Welcome to my blog!
My life is not so exciting that I need to share it with the world, but I hope that maybe by sharing my life, I can help someone else. And, selfishly, I want to help myself, too.
This blog will chronicle my recovery from my eating disorder, but I want it to be more than that. I hope to share my thoughts and opinions, and just be able to connect with others. For those of you that do not know, I have been battling anorexia nervosa and bulimia nervosa for over eleven years. It has taken everything from me- my relationships, my schooling, my happiness and my will to live. I have been in and out of eating disorder programs and hospitals over 40 times, sometimes hoping my life would change, other times not.
I actually created this account a while ago, but wanted to wait until I was certain that I was going to recover before sharing it with the world. But why wait?? Will I ever be certain that I will recover?? How will I know when it is the beginning of that time?? One of my biggest faults is that I never want to make a decision until I am certain it is the right decision, at the right time. And often I wait so long that I don't make a decision, or allow someone else to make it for me.
So I cant guarantee that this attempt at recovery will be any different than the rest. I cant promise that every day I will be gung-ho about recovery or that I welcome a new life with open arms.
But I am hoping that whatever comes in the following days, weeks, and months, I will grow and learn.
So if you are up for the ride, I welcome you to join!